News & Updates


Registration closes at 11:59pm on October 26 
On-site registration available – $65 per person






2017 Patient and Family Version of the TS Care Guidelines are now available!

Family Guidelines

2017 TS Care Guidelines are now available for your medical providers!


After two years of dedicated work by a team of experts from both the US and Europe, the new Care Guidelines for TS have been finalized. These guidelines are directed by evidence-based research. 

Be sure to share them with all of your medical professionals.

A big thank you to TSGA, TSSUS, Dr. Backeljauw, Dr. Gravholt, all of the medical professionals and advocates, and all of the sponsors who played a part in making this happen.


Fundraising is essential for TS Carolinas to continue the programs we currently have and to provide additional programming. Members are spread throughout the Carolinas, making it difficult to join in one big fundraiser. So, we are asking our members to hold their own mini-fundraiser to support TS Carolinas. We are providing several ideas of fundraising but the sky’s the limit. If you have an idea, go for it, then share it with us. To see our ideas for fundraising, click on the picture.